We have the great pleasure of introducing our newest LifeSound hearing ambassador, Amy Nicole Wilson. We asked Amy to take a few minutes out of her busy schedule to sit down with us and let us know a bit more about herself and her experiences!

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Tell us a bit about yourself
I am 21
years old and I will be 22 in February next year. Currently I am studying a BA Honours in Drama and
Performance Studies at the University of KwaZulu-Natal in Durban, majoring in
theatre design and directing. I already have a BA in Drama and English, which I
completed in 2010. I live in Durban with my parents and my older brother and
have lived here my whole life; I went to school at Danville Park Girls' High.
My interests are quite varied, acting and design tend to take up most of my
time but I am also a passionate horse rider as well as singing and playing the
guitar.
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What is your hearing loss and what steps have you taken to manage
this?
I was first
diagnosed in high school; I think it was when I was 16 years old. I had been
struggling for a few years but didn't realise I had a problem until I was being
teased for being too loud and my marks in school were suffering when I couldn't
hear the teacher. I don't have a severe condition, due to ear infections when I
was a baby I have slight hearing loss in both ears (I haven't been for my
annual check-up so I'm not sure of my current percentage). I also have a
condition that means I cannot hear when there is background noise (my
audiologist explains it as having 2D hearing as opposed to 3D, I hear
everything at the same level!), which affects me much more, then the actual
hearing loss. I wear a Widex CIC hearing aid in my right ear; it helps separate
the sounds so I can hear the different noise levels. A hearing aid in each ear
would be more helpful but quite expensive (my father also wears an aid due to
the same condition) and my one aid is quite successful and I am able to hear in
most situations with it in.
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How would you say your hearing impairment has affected your everyday
life individually, professionally and socially?
It was very hard in the beginning to adjust
to my hearing aid. I always thought it was normal to not hear in public areas
and to suddenly be able to hear separate noises was quite alarming, I remember
being shocked how people scuffed their feet when they walked! I also didn't
tell anyone except my closest friends which meant when people sitting next to
me saw my hearing aid (as small as it is!), they would make a big deal about it
and I would be very embarrassed, especially when people would call me deaf
which I am not. As I have gotten older I don't look at my condition as being a
disability but rather it being just like wearing glasses (which I do as well
for reading!).
Academically it has hardly affected me, I chose to not inform
the university of my condition as I knew there were people with much worse
disabilities that needed the university's help much more then I did. All I did
was tell my lecturers in private and sat in the front of lecture venues often
armed with a Dictaphone in case I missed anything. Despite it I got the deans
commendation throughout my degree and graduated, missing cum laude by just
0.5%. Professionally it has been quite tough with a hearing aid. Being an
actress is tough under normal circumstances but being one with a hearing
condition has meant that I have to work a little harder. We were worried when I
was first diagnosed that it would negatively impact my career but I was
determined to make it. Mostly my directors are unaware of my problem; people
often start to treat me differently when they find out and I didn't want any
special treatment or miss out the opportunity to get lead roles because of the
worry that I might not be able to handle it. I usually get away with it, and
have taken to keeping spare batteries all over the set in case my aid runs out
on stage (Which has happened on several occasions!).
I still struggle a bit
socially, while my aid enables me to be able to converse a lot easier with
friends, I have an aversion to hugging people hello as my aid buzzes in their
ear which means I get some funny looks! At concerts and clubs I struggle as
often I have to make the decision of wearing my hearing aid which means I hear
my friends but not the music or not wearing it which means I can enjoy the
music but have quite a vacant expression on my face when being talked to. But
my friends are fantastic; they are very understanding and supportive and
usually make jokes about it.
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What are your dreams, hopes, and aspirations?
I have been
acting on stage since the age of 9 years old and my dream is to carry on with
it as long as I can. Next year I hope to study my MA in theatre design and take
my studies as far as I can! I am also a scriptwriter as well as a director and
my dream is to inform people through theatre of different issues that need to
be dealt with. This year I co-wrote and co-directed a play that went up to the
National Arts Festival in Grahamstown that dealt with the effects and consequences
of bullying in schools (something that I went through while young). I am
working on a script that deals with how society looks at people with
disabilities and hope to take it to schools sometime in the future. I want to
educate children that having a hearing aid is not something to be ashamed of,
its like wearing glasses, and no one should be treated differently because of
it.
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You mentioned that you are a student. What industry/profession do
you see yourself going into? In what way would you say your hearing impairment
has affected you and how have you overcome this?
After my studies I hope to work
professionally in the theatre industry; in acting, designing and directing. I
want to eventually start my own production company and do plays that can be
both professional but educational at the same time. My hearing impairment has
only affected me in the way that it has made me more determined to show people
how it doesn't affect me. Sometimes I have to find creative ways of disguising
my aid while acting but as I have one of the smallest ones I could find, most
of the time it doesn't get in the way. Sometimes I struggle with hearing cues
when I'm offstage but I have fantastic friends who help me out as much as they
can. Recently I missed out on getting a lead role in a production as there was
a lot of water involved and I couldn't be on stage without my hearing aid,
neither could I get it wet so I had to ask for a role which wouldn't require me
to get wet.
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What are your hobbies? Does your hearing impairment affect these and in
what way?
My hobbies
usually revolve around my career (I have little time for anything else!). In
terms of design I find my hearing impairment helps me, often I like to
concentrate in silence and find that turning off my aid gives me that! I enjoy
to horse ride on the weekend as a hobby, sometimes my aid gets a bit clogged
with dirt and I can't hear my instructor but it usually just makes for some
entertaining lessons. I have always been quite passionate about playing the
guitar but find it difficult with my hearing aid. Before I got my aid I played
and coped fine as I didn't know any different. When I got my aid it changed how
I heard the music and was really confusing and now I tend to juggle wearing it
and not wearing it when I play.
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We often hear from our patients that they
feel isolated and frustrated by the way other people treat them. Do you have any
comments?
Oh
completely. I get extremely frustrated when people treat me differently because
I wear an aid. Just because I am young I am pitied for my condition as ignorant
people think that it is only elderly people who wear aids. Wearing an aid means
I am not completely deaf and as I can function normally so I don't like getting
special treatment. I believe people need to be more educated and realise it
isn't some weird disease or something that I am ashamed of. To me it is normal
and a part of who I am and I want to be treated like that. Before I found your
store I was going to chemist and another store and I found as soon as I asked
for hearing aid batteries or wax filters they would immediately switch from
treating me normally to slowing their speech down and giving me pitying looks,
as well as one assistant even saying to my mom that she was sorry for her. What
I liked immediately about your shop assistants was that they were very friendly
and professional and didn't treat me any differently.
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How did you hear about LifeSound and find our Facebook page?
I found your store by walking through
Gateway and passing the store (The pig Shox speakers actually made me stop and
look in!). When I saw that you sold hearing aid equipment I went in to buy
batteries and when I saw how friendly and helpful your staff was I started to
regularly buy my equipment from the store. I think I saw that a friend of mine
had 'liked' your FB group so I joined it as well.
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Do you have anything to add?
I think this is fantastic and love what you
guys are doing. I believe people need to be more educated about how delicate
their hearing is, especially with loud music being so common nowadays. I think
it is important that the stigma around hearing loss and wearing an aid is
changed and that people can be more educated about it. No one deserves to be
treated differently for something that is normal and not their fault. It is
really hard to get information about hearing care management etc and I can't
get to my audiologist often because of my career and its nice to have somewhere
free to get advice and tips! Its really nice to know that there are so many
people who have conditions like me and get a chance to talk about it and share
experiences. Its definitely something that we need more of and I think the more
people talk about it and the more the general community can see that successful
people have hearing problems and cope despite of it, the better the hearing
impaired community will be accepted.
Thank you so much Amy, for taking the time to share with us. We're positive your story will prove inspiring and valuble to those having similar experiences in their lives.